E-HOD Patients’ Survey

 We would like to invite you to participate in our Survey aimed at patients with homocystinuria or methylation disorders as well as parents or caregivers of children with these disorders.

To participate on the survey please, follow THIS LINK.

The aim of this survey is to evaluate E-HOD from the patient's perspective, help us more effectively prepare for the Patient-Expert Meeting due later this month and to develop future initiatives, advocate for the needs of patients and their families and to establish a baseline to measure whether we are achieving our goals.